Prader-Willi Syndrome Association UK (PWSA)

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Email admin@pwsa.co.uk
Website http://www.pwsa.co.uk
Telephone 01332 365676
Address
c/o Metcalf's Commercial Decorators Ltd
Unit 5, 3 Deer Park Road
Moulton Park Industrial Estate
Northampton
Northamptonshire
NN3 6RX
Contacts
    • Victoria Cooke
    • Finance & Operations Manager
    • Jackie Lodge
    • CEO
Purpose

To ensure every member of the PWS community has access to high quality care, opportunity and support, and to promote awareness, build knowledge and further research in order to overcome the challenges of PWS.
Services

Support and advice. Advocacy. Information on managing PWS.



Website.



In-house training for professionals working with someone with PWS.



Newsletter and e-news. Conferences.



Family days and weekends. Fundraising.
What they do
  • Advice/information/advocacy/legal
  • Carer support
  • Children - Parenting & Families
  • Disability support/access
  • Education/training
  • Food / hunger
  • Funding advice
  • Health - Eating
  • Health - General
  • Health - Learning Disabilities
  • Health - Mental Health
  • Leisure and recreation
  • Mediation
  • Research
  • Social Welfare Rights / Benefits
Who they work with
  • Asian - Bangladeshi
  • Asian - Indian
  • Asian - Other
  • Asian - Pakistani
  • Asian or Asian British (any)
  • Black - African
  • Black - Caribbean
  • Black - Other
  • Black or Black British (any)
  • Chinese
  • Mixed/multiple Heritage (any)
  • Mixed/multiple Heritage - Other
  • Mixed/multiple Heritage - White & Asian
  • Mixed/multiple Heritage - White & Black African
  • Mixed/multiple Heritage - White & Black Caribbean
  • Other ethnic group
  • White (any)
  • White - English/Welsh/Scottish/Northern Irish/British
  • White - Gypsy or Irish Traveller
  • White - Irish
  • White - Other
Geographical area coverage South Derbyshire,National
Space for Hire No
Opening Times Usual office hours - Mon to Thurs 9.00am - 5.00pm, Friday 9:00am - 1:00pm. Family events and conferences usually take place at weekends.
Eligibility Criteria Anyone affected by Prader-Willi Syndrome, whether directly or indirectly.
Meeting Place Various places around the whole of the UK.
Service Costs All our support, advice and guidance services for families and people with PWS are free. Training costs for professionals vary (see website).
Is a registered charity? Yes
Charity Number 1155846
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